Monday, December 6, 2010

Amgen Holiday Party!

Dianna gets all dolled up! (27 weeks)
From Amgen Holiday Party 2010

These photos are totally worth a blog post, just to make sure everyone sees them. I really had a blast at this weekend's Amgen Holiday Party. Unfortunately Zane was sick, so I went solo without Gus. Even though Gusti was sorely missed, I did manage to have an absolutely wonderful time without him. Here are just a few of the highlights...

Dianna dancing to Bon Jovi
From Amgen Holiday Party 2010


Photo booth fun!
From Amgen Holiday Party 2010

Tuesday, November 16, 2010

Trey's lullaby

It is funny how music enters your mind subconsciously.

I sang so many different songs/lullabies for Zane, to the point that I never thought that one was specific to him. I only noticed this when I was pregnant with Bryce, because I wanted Bryce to have his own lullaby. So one day, a few weeks prior to Trey's 18 week ultrasound, I was crying and praying in the shower for a survivable child or the strength to go through the agony again. A few minutes later this song, from Land Before Time, popped into my head

If we hold on together - Diana Ross
(short excerpt)

If we hold on together
I know our dreams will never die
Dreams see us through to forever
Where clouds roll by
For you and I

Souls in the wind
Must learn how to bend
Seek out a star
Hold on to the end
Valley, mountain
There is a fountain
Washes our tears all away
Words are swaying
Someone is praying
Please let us come home to stay

If we hold on together
I know our dreams will never die
Dreams see us through to forever
Where clouds roll by
For you and I


Suitable, don't you think? Stay with me Trey, our adventures are yet to come.

Random thoughts, that I thought I would share...

P.S. So I absolutely love to sing, and I am never embarrassed to do so... BUT this song is quite hard (If you know the tune, try it you will see). Diana Ross, hats off to you!

Sunday, November 14, 2010

Zane is growing up!

"Mommy, Mommy, I need your help"

In kitchen- "yes sweetie?"

"I need you to wipe my butt".

From Nov-Dec 2010

Zane went potty ALL by himself. Yes, he has been trained for almost 2 years, but he tells us and then we have to lift him onto seat. This time he climbed up and did his business all on his own.

From Nov-Dec 2010

Things that mommies are proud of...
Love to you all!

Dianna

P.S. There are also some GREAT photos of Zane in the bathtub (in case you missed it - posted in October). Look at our web albums for more...

From Sept-Oct 2010

Sunday, October 10, 2010

Joyous news!

We have news to share that prior to now, I was either too scared to write about it or too tired to stay up late to blog. We are pregnant with baby number 3! Due date is March 11, 2011 which places us at 18 weeks tomorrow. Scared and nervous, but extremely wanting this child we call our view on this pregnancy as "cautiously optimistic".

From Baby Zeiner #3

In the womb we called Zane "Ziggy the zygote", with Bryce it was "El (elvis) the embryo". This baby was simple... just Z3. You should know that we decided after it took us literally over an hour to come up with El the Embryo that from that point forward we were going to call any future pregnancies Z3, Z4, Z5 etc. (Although at the time I never thought I would be pregnant 3 times.) 14 weeks ago, we decided to stick with Z3, thinking it was kind of cute. Hence the name. Even though I have not blogged any stories about Z3 up to now, I have taken a few pictures of the growing belly and also placed the ultrasound photos in a web album. Please take a look and notice how truly happy I am about this baby.

For weeks I have been wanting to write about this pregnancy, but truthfully I did not know what to say and I also did not want to document all my sad and fearful feelings. This pregnancy is a new and completely different pregnancy. This baby deserves my love and attention and even though I will always love and remember Bryce, I do not want Z3 to be overshadowed by any sadness.

So here is a quick catch up of this pregnancy, and more posts will follow soon:

Starting Jan 2010 we began officially "trying" and every month from April on, when it did not happen I cried and thought something must be wrong. I know in general it takes parents sometimes up to a year to get pregnant, but with Zane and Bryce we were pregnant on the first try and I thought that maybe something was genetically wrong and that Zane was our miracle child. Plus in this modern age, it is pretty easy to know when you are ovulating. Between books and tests, it leaves little spontaneity in the "let's keep trying" phase. So come May, I made a deal with myself. I either get pregnant by my June cycle or I am taking a hiatus. I was placing too much pressure on myself and obviously still very sad at the year anniversary of Bryce's death. So here was the deal (made with the help of my dear friend Santosh), if I was pregnant by July 4th great! If not, I was going to buy a plane ticket to India and travel with her over Thanksgiving. Trust me I totally thought it was a win-win and at least I was excited about something come the end of my June cycle.

From Baby Zeiner #3

Well surprise surprise,over the July 4th holiday we confirmed I was pregnant and baby number 3 was on its way! Morning sickness began quickly after that and even continues to this day. I only have a 2 day max window so far of my stomach being at ease. BUT do not feel sorry for me, I consider this a good sign. With Zane I was sick until week 18, with Bryce I was barely sick at all so in general I am happy to be sick. Strange but true. I know there is no scientific evidence for the level of sickness being equated to how healthy a baby is, it is a metric for me... at least it calms me down during the rough mornings. =)

Even with our past history, we elected to not run any genetic tests on Z3 (at least not until the 20 week ultrasound). We reasoned that we are a family that can take care and love a special needs child, so all that mattered to us was if the child could survive and what type of quality of life he/she would have. CVS and amniocentesis comes with a risk, and we definitely want to minimize all risks associated with this pregnancy. So we decided to wait until the high resolution ultrasound (given instantly to us because of our history) and see what blessings were in store for us. Of course this is easier said than done. I have been in a state of fear this entire pregnancy that only recently did I realize the weight I had been carrying around.

After discussing concerns with our OB at our 13 week check up, we made an ~18 weeks ultrasound appointment (2 weeks early but still able to detect any malformations) at Stanford Children's Hospital. By now, my Amgen colleagues knew I was pregnant because it was pretty obvious if you looked at me. Plus we just passed the first trimester milestone so I began to become more positive about this pregnancy and Z3. Both Harriet and Nana took me on a lovely shopping spree to get some new duds. (Not that I "needed" any clothes, but I am always up for a little pampering.) It was very appreciated. Then at 16 weeks, my sweet and adoring husband bought me a gorgeous necklace to celebrate my 3 children. I absolutely love it! Plus my energy level recently returned to allow me to stay up until 10pm, (prior to this I was crashing with Zane at 8:30pm). So life has been pretty good for the past few weeks.

From Baby Zeiner #3

Prior to our ultrasound, our therapy sessions had given us a mantra "We did this on purpose for our family". Many family and friends stated "this one will be o.k.", but that honestly did not make me feel better. I kept thinking there was still no way to know, so what made me feel better was "we did this on purpose for our family". It included the chance we were taking, the risk of our hearts breaking again, knowing that we wanted "children", and that Zane and his grandparents deserve more. So the morning of and any other stressful moment prior to our ultrasound I reminded myself that we did this on purpose for our family.

Last Friday Oct 8th, we had our ultrasound. Within seconds we could see that Z3's stomach and heart were in the right place and I began to cry. Then I cried more because what a horrible metric to have. It was just a reminder to how sad a life Bryce actually had. Wonderful news continued to follow as the lead radiologist told us that "No fetal malformations were identified". There was a clear facial profile with an intact palate and the cutest little legs that matched Zane (and mine). Z3 loves to wave and we were very happy to see his heartbeat. We left the ultrasound in a state of shock, realizing this is how it is suppose to happen - the first with all three pregnancies (even with Zane they found a Choroid Plexus Cysts in his brain that lead us to have discussions with genetic counselors-- obvious he is fine and now they claim the presence of one cyst as a normal part of brain development). Z3 gave us the first clear ultrasound, leaving us dazed. We were prepared to hear some sort of bad news... even if it was something that you can have a healthy child with, but to hear the most perfect news left us in disbelief and VERY HAPPY.

Just for clarification, this was a level 2 ultrasound. They looked at brain, heart, facial structures, diaphragm, stomach, bowel, kidneys, bladder, spine, hands, feet, placenta, cord insertion and placement around maternal cervix. ALL reports came back within normal limits. YEAH!!!!!

From Baby Zeiner #3

Cheers to Z3! Congratulations little kiddo! We are so happy and have been in love with you since prior to your conception. I am even more pleased that you are healthy and feel blessed that you have touched our life. Just ~20 more weeks to go. Hang in there and no rushing out!

So I am sure you are wondering what is the gender of Z3. Well, we wanted to celebrate a healthy child first so we waited to find out the sex. BUT we did have the radiologist place a picture in a card for us to open at a time of our choosing.

From Baby Zeiner #3

Over the weekend we did open the card and celebrated as well. We are very excited to announce that Z3 is definitely a boy or a girl. Another post will follow, so stay tuned. I figured this post has enough in it to write about.

Love to all,
Dianna

Friday, May 14, 2010

Inspiration during this past year

"Just a second and were gone. Just an imprint when were done.
It should be forever, God told me. We're born into the wrong time"

-
Backseat by Carina Round

From Bryce Aubrey Zeiner

"There is no foot too small, that it can not leave an imprint on this world"
- Now I Lay Me Down to Sleep


From Bryce Aubrey Zeiner

NILMDTS is the organization that gave us the precious gift of Bryce's photographs.

There is this book called Trauma for Transformation, discussing true stories about extreme events and how they transformed people for the better. I am not yet at the point were I would ever presume that Bryce's death has changed me in a positive way, but it has changed me. Partly reminding me of the core of who I am and also realizing the person I have become. My transformation journey is not yet over; this past year was only my grieving phase. I am hoping to spend any remaining sadness and energy by honoring his life and affecting the world. Small steps, taking it one day at a time, but we will see.

I have my insomniac moments where I spend hours on the computer searching various things on the web, always spawned by wanting answers and hoping to find something meaningful. In my search I discovered a few inspirational music, websites, support groups and nonprofit organizations. I thought I would share these with you today, just so you know of the amazing spirit we all have in this world. (Every text in this blog that is colored green, is a link that I encourage you to explore).

There are a number of organizations that supports families with Trisomy children. I find solace in knowing about these two: SOFT and Ironman for Kids (team Trisomy). If Bryce had the chance to live, we would not have been alone in raising our special needs child.

"Changing the world one smile at a time" - Smile Train, a nonprofit organization that provides free cleft lip/cleft pallet surgery for children around the world AND free medical training for doctors and personnel in low income areas.

Many of you might remember that during two years of undergraduate I was a camp counselor at Camp John Marc. One of my greatest comforts during this last year is that I KNOW I could have raised Bryce. There is no doubt in my mind. I have the family infrastructure, medical support network, money, job and friends to have been able to do so. But most importantly I have the heart, and Camp John Marc reminds me of that.

There are so many precious angels in Heaven.

SMALLEST WINGLESS
-- Craig Cardiff

Dear One, we've been waiting for you.
We're thrilled, beside ourselves, that you've arrived.

White coats came in,
heads held low,
and talked for a bit, shuffled outside.

We closed the curtains and held each other,
and cried.
We said hello at the same time that we said goodbye.

The smallest and wingless,
leaving as soon as you arrived.
Sadness is just loved wasted,
with no little heart to place inside.

We closed the curtains and held each other,
and cried.
We said hello at the same time that we said goodbye.

From Bryce Aubrey Zeiner

Wednesday, March 3, 2010

Thank you for supporting me

Tonight I went to a support group for families who have had to make the heart wrenching choice to terminate a wanted pregnancy. I have been to this support group a few times since Bryce's death, finding consolation in knowing that I am not alone in my grief and actually finding strength in how others deal with sorrow. I am continually amazed by various women in this group, and genuinely thankful that there is a forum to commiserate.

You might be asking yourself "Wow, it has been 9 months, Dianna is still grieving?" Yes, but do not be too sad about this. I want to grieve. I want to remember. I want to honor Bryce by not forgetting his precious life but I also want to allow myself appropriate time to process everything that has happened in this last year. And processing requires time...

Let me tell you, 2009 was the longest year of my life. During the week of learning about Bryce and his death, I remember every second. During the days to months that follow, I felt like I was running a marathon in slow motion. If you were to ask me what I did in my life in 2005 (year before I was pregnant with Zane) I would answer "I don't know". 2005 had no significant meaning other than I was living a pleasant life with husband and new dog, enjoying my family and new friends in the SF area. At least in 2006, I have multiple memories of being pregnant with Zane, but all of that seems like a blur. 2009 was that long! It seems like ages ago when Zane was a baby. Heck, we just had Zane's 3 year birthday party, and it seemed forever since his 2nd birthday. Don't get me wrong, I enjoy all my moments with Zane so even with this stretched length, I have had many good memories but this past year does seem very elongated.

Gus and I are thinking about having another baby. There, I said it. I throw this out there to explain what I am currently grappling. I am so scared. That's it, seems simple but it has shut me down emotionally for the past few months. After our cathartic hike in Kings Canyon during September, we discussed we were ready to have a baby. Every month since then, I have simply been too scared. I have mentioned this to a few friends, but typically just try to live a reasonable non-eventful life. "No drama" is what I have been hoping for, so I have shied away from anything that would cause it. Getting pregnant, coming to terms with my mother's post-stroke disability, dealing with my father for not remotely supporting me through the harshest moment of my life. You know, stuff like that. So I appear fine, but in reality can not find anything worthy to write about and share. Causing an even-keeled life, but empty in anything meaningful because I have not allowed myself to truly feel.

2010 brings new hope. I find myself more energized to deal with life. Although scared, I am at least finally excited about having a 3rd child, and I am willing to write about it on this blog. By acknowledging my fear, it makes it seem real and that a 3rd child is actually a possibility. Also we are moving my mom from Houston to Arlington so she can be close to Nana and have some observant care. (Mom is doing well, but not the same. She is clearly deficient in certain areas, but is willing to but forth effort to improve her health and cognition. It will be a long process of recovery, but at least she has the chance to be able to recover.) And the issues with my father... well that is a different blog for another time.

But I rather focus on the positive. Please accept my sincerest thanks to those that did support me, especially the ones that I did not ask for help but you were there. Thank you for those that did call or come by and just listen. For those that were not afraid to hear me cry, and thus heard me laugh too. Thank you for tolerating my sadness and my anger. Thank you for having faith in me, when the entire process could make anyone question faith. Thank you for making me realize just how strong my support network actually is. Because when I was depressed or anxious, I remembered everything you did for me. I felt the hands lift me up from the deep hole I fell in. I saw how hard it was for you to hear my words and know my grief. Thank you for embracing me and my family. Thank you for loving us.

I have needed to say this for a long time. Please know that I could not have survived 2009 without you. Truthfully, I am not that strong. It is because of your love and support that I was able to get past so many hurdles. I feel like I can finally breathe again, to not feel that I was moments away from drowning. I am not sore anymore, I am not numb. I can live life again.

Although I am wounded, I am stronger with your strength.

Dianna

Saturday, June 13, 2009

God carried me

May 15, 2009, the day Bryce died. Unarguably the worst day of my life. I have not written a post in 3 weeks, secluding my thoughts in sorrow and trying desperately to become normal again. I have given up on "normal", I am just trying to function. In the biblical times, women were allowed months to wallow, draping themselves in black and allowing the world to continue without them for a period of time. How lucky am I that I can actually do this too? If someone in my immediate family died, I would receive one week off work, but because I am on medical maternity leave I get 6 weeks. It is true, that I did need healing time but I thought for sure that I would come back to work by next week. I have until June 26 and I honestly do not know what to do, receiving advice on both sides. Unfortunately week 3 is when postpartum kicks in, and outside of grief, I am having hormone issues as well. It's funny to me that my therapists and doctors say to take the full time off. Think they know something I don't, or did I possibly scare them when I spoke of my innermost feelings? To say the least, I am mourning. Of course I am, I lost my son. To say more... I am having guilt issues. My beautiful precious boy, how could I have made that choice? Why couldn't I find some other way to protect you? I have struggled with these thoughts (to be honest worst) these past weeks. Taunting myself with the horror of my decision. Forgetting that Bryce would inevitably die slowly, over months in pain. How can I possibly succumb to guilt, to blame myself for his death, the murder of my son?

...Because he is my son, and I love him. I just want him back. I finally realized yesterday that even if I have this guilt, I take that pain to save him. Deep down, I know I made the right decision but it is easy to let your emotions (not to mention the postpartum hormones) take over and cloud your thoughts. But if that is the price I pay to help Bryce out of discomfort and pain, then I proudly take it. I did everything I could to save Bryce, and he is saved.

We mentioned in another post that there were actually happy memories on May 15. Two of them I will talk about in this post, for the hope of drafting them to help me in my grief. First, one of the happiest memories of my lifetime is when I saw Bryce. Bryce was suddenly not a black and white pixelated picture but a baby's flesh, delicate and fragile. Lifeless, but the most beautiful tiny soul I could ever imagine. How lucky am I to have that memory? We did not choose to deliver Bryce to hold him, to see him. We chose to deliver him to honor his body. I honestly did not think about the gift I would receive by seeing that precious little boy, I actually feared it. Yes, he had two cleft lips and a cleft pallet, but honestly he would have been a poster boy for children with Trisomy 13, a model child. His skin delicately folded into a flower above his lips, covering the deformities. He was truly beautiful, an image I will never forget. His body was perfect, at least on the outside. Ten little toes, ten little fingers. Gusti's long legs and rectangular hands, my mother's lips - skinny and delicate, Nana's nose, my butt. No fat had grown yet, but Bryce did kick and punch, so he had muscles in his arms, shoulders and legs. My little Adonis, minus any stomach muscles... and Gusti's face. Bryce truly was a beautiful child, in all ways. I constantly look at the ultrasound photo and the karyotype to remind myself that on the inside Bryce was hurting, with no chance of survival. His beauty did lead to more guilt but that feeling is something that I gladly suffer just to know what he looked like.

I did not realize all the positive outcomes of that day, I paid no thought beforehand of anything other than how to save and comfort Bryce. In the last minutes of his life I did not allow myself to be stressed, knowing that Bryce would be able to sense the stress hormones. I wanted him to be at peace, relaxed, completely oblivious to what lied ahead. The night before, I prayed to God to give me peace, to give me the strength to be able to accomplish this. I begged for a miracle to reverse Bryce's medical conditions and pleaded for God to give me a sign to show that he did not approve of our decision. If I had even one doubt that entered my mind that day, I would cancel the whole procedure.

I woke calm, ready for the day ahead. Knowing that we were having a hard time finding a Chaplin that would baptize Bryce in utero while he was alive, I woke with an epiphany. I would baptize him. I grabbed my great-grandmother Nanny Petty's Bible, a rock chalice my mother gave to us for our wedding (but it arrived late) resembling a wooden cup, water and pictures of the family. The procedure began at 10am, if I did not hear anything by 9am I would baptize Bryce alive. This was important to us, both myself and Gus. The genetic counselor helping with the arrangements, told us that we can easily have a Chaplin baptise a stillborn, but only after the delivery. I know God saves all children, but it was imperative that Bryce was baptized alive. We reasoned that with this blessing he would be a peace before he died. At 9am waiting at the hospital chapel, we received no phone call. I placed family photos around us, opened the Bible to Pslams 139 "For you are fearfully and wonderfully made", and miraculously found other passages unmemorized that spoke of the love for your child. Prayed out loud and asked for strength, asked for forgiveness but stated that I was willing to risk damnation to save my son... begging again to please give me a sign. I asked God to bless the water and with a cross of my finger, Bryce was baptized in utero, alive. While, we were packing up I received a phone call. A Catholic Chaplin had heard our story and was rushing over to the hospital, he was 5 minutes away. It was 9:40am. An easy decision was made, that we would just be late for our 10am appointment, this was far too important. An out of breath elderly man arrived, with a gentle smile and hug. While the Father prayed, he thanked God for giving us wisdom to understand what we needed to do. He thanked God for the doctors and medical technology to know our answer. He asked God to give us peace. Bless this Chaplin, bless God for giving him the words that I needed to hear. I walked calmly upstairs at 10:15 am to begin the procedure. Minutes after I undressed, we had a knock on the door. Another Chaplin had heard our story and was there to baptize Bryce. Although we did not have a third ceremony, the gesture was appreciated. God was there in our room, I was so at peace that I never even thought about having a doubt. I closed my eyes and meditated, Harriet said a lovely prayer, Gusti held my hand and Bryce was saved. It took all of two seconds for his heart to stop. He never moved, never flinched, Bryce was in no pain. We all stayed calm, each one of us vocalizing our own thoughts and prayers. 6 minutes past, the length it takes for cells to die without oxygen. We wanted all of Bryce to be at peace during his death. Then we wept. The agony does not need to be described, but the peace of that moment does. God was present that day. Even writing this, I have no idea how I had the strength to stay calm, to not be understandably dramatic. The footprints in the sand were single, not of two walking side by side but of God carrying me. I can not be angry with God, because he lifted me up. I was at peace the moment that Bryce died. Thank you Lord.

It helps to write this, hoping that it will help me overcome my grief and my postpartum. My postpartum depression with Zane lasted for approximately 14 months (another blog to write), and I have barely spoken about it. I pray that I can get my hormones under control before then. It is not safe to have another baby until I not only get off the antidepressants but also allow my biochemistry to normalize. This is very important, or I will emotionally hurt the family I love. As strong as I love Gus and Zane, postpartum is not like that... just get over it for your family. It drags you deeper and deeper into the rabbit hole until you slowly crawl your way out. You have very little control. I had a beautiful, healthy baby with Zane, and I still had postpartum. A good friend asked, "Dianna, if you lived in Texas do you think you still would have had postpartum?" A fair question to ask, but also a simple answer to give. Yes. Hormones are a crazy thing, I know I met my match with the grief of Bryce. I have given myself to the Lord, and the Lord has given me help including the medical help necessary to heal me, along with my amazing support network with family and friends.

God, please continue carrying me. I need you now more than ever.

Footprints in the Sand -- Mary Stevenson, 1936

One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky.

In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints, other times there was one only.

This bothered me because I noticed that during the low periods of my life, when I was suffering from anguish, sorrow or defeat, I could see only one set of footprints, so I said to the Lord,

"You promised me Lord, that if I followed you, you would walk with me always. But I have noticed that during the most trying periods of my life there has only been one set of footprints in sand. Why, when I needed you most, have you not been there for me?"

The Lord replied, "The years when you have seen only one set of footprints, my child, is when I carried you."