It should be forever, God told me. We're born into the wrong time"
-Backseat by Carina Round
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| From Bryce Aubrey Zeiner |
"There is no foot too small, that it can not leave an imprint on this world"
- Now I Lay Me Down to Sleep
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| From Bryce Aubrey Zeiner |
NILMDTS is the organization that gave us the precious gift of Bryce's photographs.
There is this book called Trauma for Transformation, discussing true stories about extreme events and how they transformed people for the better. I am not yet at the point were I would ever presume that Bryce's death has changed me in a positive way, but it has changed me. Partly reminding me of the core of who I am and also realizing the person I have become. My transformation journey is not yet over; this past year was only my grieving phase. I am hoping to spend any remaining sadness and energy by honoring his life and affecting the world. Small steps, taking it one day at a time, but we will see.
I have my insomniac moments where I spend hours on the computer searching various things on the web, always spawned by wanting answers and hoping to find something meaningful. In my search I discovered a few inspirational music, websites, support groups and nonprofit organizations. I thought I would share these with you today, just so you know of the amazing spirit we all have in this world. (Every text in this blog that is colored green, is a link that I encourage you to explore).
There are a number of organizations that supports families with Trisomy children. I find solace in knowing about these two: SOFT and Ironman for Kids (team Trisomy). If Bryce had the chance to live, we would not have been alone in raising our special needs child.
"Changing the world one smile at a time" - Smile Train, a nonprofit organization that provides free cleft lip/cleft pallet surgery for children around the world AND free medical training for doctors and personnel in low income areas.
Many of you might remember that during two years of undergraduate I was a camp counselor at Camp John Marc. One of my greatest comforts during this last year is that I KNOW I could have raised Bryce. There is no doubt in my mind. I have the family infrastructure, medical support network, money, job and friends to have been able to do so. But most importantly I have the heart, and Camp John Marc reminds me of that.
There are so many precious angels in Heaven.
SMALLEST WINGLESS
-- Craig Cardiff
Dear One, we've been waiting for you.
We're thrilled, beside ourselves, that you've arrived.
White coats came in,
heads held low,
and talked for a bit, shuffled outside.
We closed the curtains and held each other,
and cried.
We said hello at the same time that we said goodbye.
The smallest and wingless,
leaving as soon as you arrived.
Sadness is just loved wasted,
with no little heart to place inside.
We closed the curtains and held each other,
and cried.
We said hello at the same time that we said goodbye.
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| From Bryce Aubrey Zeiner |
